Most breast cancer surgeons don’t speak to patients about reconstruction options

Only a third of patients with breast cancer discussed breast reconstruction options with their surgeons before their initial surgery, a Comprehensive Cancer Center study finds.

Women who did discuss reconstruction up front also were four times more likely to have a mastectomy compared to those women who did not talk about options with their doctors.

“The surgical decision making for breast cancer is really centered on patient preference,” says study author Dr. Amy Alderman, assistant professor of plastic surgery at the Medical School. “Long-term outcomes are the same regardless of whether a woman is treated with a lumpectomy or a mastectomy. But that choice could have significant impact on a woman’s quality of life, sexuality and body image. It’s important for women to understand all of their surgical options — including breast reconstruction — so they can make the best choice for themselves.”

The study appears in the online version of the journal Cancer, and will appear in the Feb. 1 print edition.

The study looked at 1,178 women from the Detroit and Los Angeles metropolitan areas who had undergone surgery for breast cancer. Patients were contacted about three months after diagnosis and were asked whether they had discussed breast reconstruction with their surgeons before their procedures. Patients also were asked whether knowing about reconstruction options affected their decision to receive a mastectomy.

The researchers found that younger and more educated women were more likely to discuss reconstruction with their surgeon. They also found this discussion significantly affected a woman’s treatment decision, with women who knew about reconstruction options four times more likely to choose a mastectomy.

Breast reconstruction can be performed immediately after a mastectomy, which removes the entire breast. This type of reconstruction leads to better aesthetic outcomes and psychological benefits for the patient, compared to delayed reconstruction, previous studies have shown.

“To many women, breast reconstruction is a symbol of hope that they can get past this cancer diagnosis. Reconstruction is not necessarily the right option for every woman and not everyone is going to choose reconstruction, but I think it’s important that every woman is informed of what the benefits of reconstruction can be for their physical and emotional well-being,” Alderman says.

The researchers urge general surgeons to include discussion of all surgical options — lumpectomy, mastectomy and mastectomy with reconstruction — at a point when a patient is considering her choices. General surgeons could refer patients to plastic surgeons to discuss options before the initial surgery. Decision aids also should incorporate information about reconstruction, the researchers write.

“Patients need to be educated consumers of their health care. If a physician does not bring up an option, the patient needs to ask. She needs to either ask the physician to provide the information or ask for a referral to a specialist who can provide the information. Women need to be proactive about their health care,” Alderman says.

Some 180,000 Americans will be diagnosed with breast cancer this year. For information about treatment options, visit mcancer.org or call the U-M Cancer AnswerLine at (800) 865-1125.

In addition to Alderman, study authors were Sarah Hawley, research assistant professor in internal medicine, Medical School and Ann Arbor VA Health Care System; Dr. Jennifer Waljee, Medical School; Mahasin Mujahid, School of Public Health; Dr. Monica Morrow, Fox Chase Cancer Center; and Dr. Steven J. Katz, professor of medicine, Medical School and Ann Arbor VA Health Care System.

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